Call to action!!! Infusion patients there is a move to reduce payments for infusion services on Medicare part B. Even if you don’t have medicare this could affect you. Insurance companies tend to watch medicare and follow its actions. You may not be able to receive your medications where you need/want to. Infusion center … More Infusion patients, your voice is needed!!
I actually love spring; however there are plenty of things about spring I hate. Pollen, cold fronts, drops in barometric pressure. This Sunday about 5am the pain actually woke me up when I rolled over. The pounding in my face/eyes/cheeks and neck was like some maniacal toddler pounding on a big bass drum. I rolled … More Sinus Issues, The Neverending story!
Since it is another infusion day we’ll talk about the subcutaneous infusion of immuno globulin. I did receive IVIG for 7 years, from 1998-2005. I started infusing sub-Q (my favorite abbreviation) in 2005. I was in a clinical study for Gamunex sub-Q and loved it. I loved the freedom from the hospital infusion room, I … More Subcutaneous Immuno Globulin replacement
Of course it didn’t last but a day, but it was nice to have had a good day because I hadn’t seen any recently. We had beautiful weather last week in the 70-80 degrees and a huge downshift this weekend into the 40-50’s. I’m pretty sure that is part of the reason my body feels … More Didn’t last…
Its one of those rare days… I got enough sleep and feel pretty good. The possibilities abound in my head of all the things that need to be done. I’ve decided on cooking and some cleaning. I have been sneezing a lot since the pollen levels are getting higher, therefore I will stay inside … More One of those rare days…
I’ve been in a flare and non-sleeping cycle, I’m happy to report that broke this weekend! After a less than stellar PCP visit, and lab work I came home and crashed. As I told the doctor I wasn’t sure if I was in pain because I couldn’t sleep more than 2-3 hours at a time, … More Broke the cycle!!
This is going to take awhile, grab a drink, take a seat. I was born in the 70’s, I was a normal baby by all accounts, a bit of an escape artist I’ve heard. I had a dog and there was a cat early on, no problems there. When I was about 4 I went … More My Life Story (so far…)
Best laid plans, Who am I kidding? Apparently just myself. Had a good day yesterday, attempted dinner, folded 5 loads of laundry, cleaned kitchen, washed pots, loaded dishwasher, made hubbies tea for the week, wrangled child. Made plans for spring cleaning and tackling living room disaster today…….nope, not happening. Body decided to not cooperate, it … More Best laid plans, Who am I kidding?
Spent an hour and a half cooking dinner tonight, had worked up my courage to try sausage gravy and biscuits. Used frozen biscuits so no problem there.( I know I don’t have the energy to do it all from scratch at once!) A friend had told me to use cornstarch and not flour for the … More Dinner was a failure….
 I really don’t enjoy winter, I’m always waiting for spring after Christmas. I always forget the temperature shifts involved with spring though. This weekend it was almost 70 degrees, then a sudden shift back into the 40’s. The fibro and my sinuses do not enjoy these sudden shifts. I try to plan ahead, just in … More Spring?!?!?
Zebra Life Blog 